Long overdue

Hello
I have missed you! September flew by. I barely had time to catch my breath before October arrived. Where do I begin, as I mentioned the kids are now in school. Jaxson is in the same class as last year with the same teachers. We seem to be experiencing the same issues as last year. He isn't eating enough, behavior issues, medical concerns, issues on the bus. I decided to hold a IEP meeting to talk to his team at school. We came up with a plan or so I thought. We spoke about having him eat more food at school or more bottles. We also spoke about how the nurse/teacher/ office calls me way to many times. When I say too many times I am saying they call me on average every other day sometimes every day. The things they call me about are things that can be written in a email or the school note at the end of the day. For example that Jaxson hit his head, he needs more wipes, they ran out of extra clothes. Jaxson is in a special needs class room there are certain things that are typical for him that I do not need to called about. I told them that unless it is an extreme emergency such as he had a seizure, a high fever, throwing up or is severely bleeding then I can be called. We had the meeting a little over a week ago and last week they called me three times. All of which were things that could be put into an email or the note home. On Friday the bus driver told me that because Jaxson was so self injurious and aggressive that they will be writing up incident reports and sending them with me to sign so that they aren't held responsible if he breaks the window. Jaxson is on a special needs bus one would think that they would be able to handle him or at least think of other ways to deal with him. Now I am anxious to send him on the bus because if he does break the window I don't have the money to pay for it to be fixed. He doesn't understand that he can break the window if he continuously hits it. It should be the bus driver and aides responsibility to keep him safe.
On Thursday Jaxson had an Endoscopy for his Eosinophilic Esophagitis or EOE. The doctor said that the initial look at his throat it looks less swollen. However we need to wait for the biopsies to come back to get a complete picture. What this means is that the elimination diet (no soy, wheat, dairy, fish, nuts, seafood, citrus or pineapple) and steroids are working. While he was under anesthesia he had to have blood work taken. The reason he had to have blood work done was because he is starting on an anti-psychotic. This new medication can effect numerous levels in the body so the Dr had to get a baseline for his cholesterol, white blood count, red blood count, thyroid,glucose levels and a few other things I can't remember. Jaxson has been on several different behavior medications. None of them have really helped him. He is still very self injurious. He bites himself, pinches, head bangs, hits, punches and chin bangs. He will rip his skin on his wrist sometimes until he is bleeding. He is also very aggressive to others with pinching, biting, hitting, hair pulling and head banging. This was a last resort. I really did not want to put him on an anti-psychotic but like I said we have tried several other meds and they have not worked. I am really hoping that this one helps. I hate to see him hurting himself. Plus I also think that if his aggressive behaviors are more under control that it will be easier for him to learn stuff at school. One of the side effects is gaining weight. His GI expressed her concern about his weight. I am also concerned but am at my wits end as to what to do. When he was having over night feeds he was pulling the tubing out which was making the formula go all over the place. So he wasn't getting calories that way, I have tried increasing his bottles during the day to the GI doctors recommended about and he ends up puking. I have to okay this by the GI doctor but I was thinking that I could put 1 tbsp. of olive oil in eat of his bottles and food to increase his calories. The olive oil I have has 120 calories in one tbsp. So on average he would be getting 600 to 700 extra calories a  day.
Sooo now on to Skylar. She is having a very hard time in school. She is already behind in a few of her classes and steadily falling farther and farther behind. I have already met with her teachers, social worker, and guidance counselor. She has major defiant behaviors and they don't seem to be getting any better. She is in an enclosed classroom and is receiving lots of help at school. But I feel she needs a different environment. Her case manager has suggested she go to Sweetser day program temporarily. Sweetser is a school in Saco that specializes in dealing with kids who have emotional, mental and behavioral issues . They have a hands on programs that kids can be involved in such as animal care, farming, gardening, landscaping, automotive and wood working. It is a place that works with kids who don't fit in to a traditional education setting. I am going to give the new things we spoke about at the IEP to be implemented. After about a month or so I am going to call another meeting to see how things are going. If there is little to no improvement I am hoping they will say that she can go to a Sweetser.
I have also started school. I changed my major so I am starting from the beginning again. I was going for my Bachelors in Health and Wellness but I changed it to Associates in Medical Assisting. My end goal is once I get my degree I want to work in the ER. This term I am taking Medical Terminology and Pharmacology. It is only the second week but so far so good. I have been trying to take care of myself and recently started going to see a chiropractor cause my back was hurting. I have gone about four times and my back is feeling so much better. He gave me a few exercise to do at home which I feel is adding to my recovery. I have also been going to counseling every week which is good. I get to vent with no strings attached. 
I know this was a long post if you are still here until the end thank you for sticking around. Don't forget to click the button on the side and vote for my blog. Have a great day!
Bye for now
Kelly